Wisdom Shared with Carole Blueweiss

A Mother Shares Her Journey Parenting a Newborn Diagnosed with a Stroke

Episode Summary

Eleven years ago Mara Yale’s daughter, Mia, had a stroke at birth. In this episode, we hear how Mara’s research, advocacy, self-education, and curiosity informed her approach to parenting and contributed to her daughter’s remarkable recovery. Mara shares considerations that apply across the board for all kids, regardless of age, diagnosis, severity of injury, or track in development as well as information on both the unconventional and conventional therapies she chose for Mia.

Episode Notes

ABOUT MARA YALE

Website: www.marayale.com
Facebook Page: www.facebook.com/yalemaram
Instagram: @maramyale
Blog: www.marazoemia.net

ABOUT REGAME-VR LAB AT NORTHEASTERN UNIVERSITY

Research in the Rehabilitation Games and Virtual Reality Laboratory at Northeastern University focuses on the sustainable, evidence-based integration of virtual reality (VR) and active video games into rehabilitation practice for children with neuromotor impairments such as cerebral palsy. 

Website: www.web.northeastern.edu/regamevrlab
Facebook: www.facebook.com/regamevrlab
Twitter:@regamevr  

Audio from ReGame-VR lab interviews produced by Benjamin Bertsch and Adam Fischer.

LINKS FROM INTERVIEW 

I-ACQUIRE: www.nihstrokenet.org/i-acquire/family-resources
I-ACQUIRE clinical trial for constraint induced movement therapy: www.clinicaltrials.gov/ct2/show/NCT03910075
Cerebral Palsy Soccer: www.cpsoccer.us
Hand in Hand Parenting: www.handinhandparenting.org
The Reading Promise: www.makeareadingpromise.com
Dr. Karen Pape: www.karenpapemd.com
Children's Hemiplegia and Stroke Association (CHASA): www.chasa.org
International Alliance for Pediatric Stroke: www.iapediatricstroke.org
Sheryl Field, Field Center for Integrated Development: www.thefieldcenter.org
Feldenkrais: www.feldenkrais.com
Somatic Experiencing: www.traumahealing.org/about-us